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2010-02-09 23:53:48

This is the story of a woman affected by intellectual disabilities, a woman who died during the earthquake that shook Haiti on January 12th. It’s a commonplace story of a woman with intellectual deficiencies, dead because she was forgotten. Because when we are “different,” people push us away and forget us.

She was living in rental accommodation, alone in a room. When they had time, her sisters sometimes went to see her. It should be noted too that, in addition to living with intellectual disabilities, she was confined to a wheelchair. There was no provision made for her to get outside into the air. During the earthquake, the other residents had time to escape. They raced from their respective rooms, taking to their heels and running for their lives. She is the only person who died. Without doing it intentionally, people pushed her toward death, because when we are forced into oblivion, we are pushed toward death.

No one wanted her to die, but through the years no one had rescued her. What really frightens me about all of this is the collective forgetfulness. It is so easy to forget the most vulnerable among us, and it’s a thousand times easier in the middle of an emergency situation in which we ourselves are victims.

Haiti’s history is filled with rejection: Whites and slaves, mulattoes and blacks, rich blacks and the poor, men and women, adults and children. Where the dominant live better lives than the dominated, one quickly learns that, in order to flourish, to be raised to the rank of the “heard,” this subtle domination of others is necessary. The others, and that really means all the others, are voiceless. And as the social system doesn’t change, whether among the rich or among the poor - well then, one rejects the other, depending on their mood. At the very bottom of this extended hierarchy are those who cannot defend themselves. Those whom life required to be strong in their weakness.

The person who is intellectually “deficient” does not have the same tools to function in our society as does a so-called “normal” person (and it is often the case that the normal one are “deficient” of heart). The person with an intellectual disability will never fight against the forgetting, against this rejection of their very selves. The person who is “deficient” in intelligence forgives even before we have done them harm, and therefore does not have the intellectual will to seek recognition of his or her rights. And such a desire is in any case quickly superseded by the affective will, which seeks recognition of his or her value.

It is up to us, as human beings above all else, to give these people the place they deserve. Not a ghetto – separate and isolated - but a place well and truly anchored in our societies. This forgetting of people affected by an intellectual disability is not the only problem Haitians face. I have had the enormous privilege, through my years at L’Arche, of learning that the strength of one person, more often than not, becomes the strength of another. All it takes is that we let ourselves be touched by that other.

Here in this hot country, we have not yet started to rebuild. Every day is an emergency for those who live in Port-au-Prince. All this urgency, the demands of daily life that are so ridiculously distressing for hundreds of thousands of people, doesn’t offer much hope for our cause. They are here, somewhere, the thousands of people affected by intellectual disabilities. Still hidden, still devastated, still forgotten. But in an emergency, we think of ourselves before we think of the other.

Comments

Dear Jonathan, I did not know that L'Arche had any communities in Haiti...

Gilda Vincent
Posté le 2010-02-23 18:13:43
Dear Jonathan,

I did not know that L'Arche had any communities in Haiti until today, when I received an email with a link to your blog. You have brought tears to my eyes with this posting.

I am waiting to get paid so that I can make another donation for earthquake relief in your country. This time I will donate to L'Arche. People with disabilities have long been near my heart, in particular since the birth of my son who has Down syndrome, eighteen years ago.

May God continue to touch you and to use you to touch others.

Your penetrating words and photos made my heart ache. It's so important what...

Erika Konya
Posté le 2010-02-23 04:08:50
Your penetrating words and photos made my heart ache. It's so important what you do, thank you for sharing.

Hi, I've received an email from Francis O'Hanlon, who I believe is a friend...

Katherine Parker
Posté le 2010-02-21 09:13:21
Hi,

I've received an email from Francis O'Hanlon, who I believe is a friend of you (the blog writer). I've put a link to your blog on my Facebook page for the University of Leeds (UK) Haiti Campaign, which can be found at: http://www.facebook.com/?ref=logo#!/group.php?gid=299095309574&ref=ts

It is a very emotive story, and I hope others will be driven to help those less fortunate than themselves when they read it.

Katherine Parker
The University of Leeds Student-Staff DEC Haiti Campaign (UK)

Hi Jonathan, Thank you for bringing us a little bit closer to what is happening...

Colette Coughlin
Posté le 2010-02-14 20:56:35
Hi Jonathan, Thank you for bringing us a little bit closer to what is happening there with your beautiful photographs and stories of Haitian people. We are so lost in our complexity that we often forget the simplicity of what is most beautiful... people... nature... and life. It is impossible to understand why so many must suffer when there should be enough for all of us, and yet we lose contact with the essential so quickly, we must be grateful for the situations that bring us back there! Thank you for your window on this world... we all need to be shaken up a little perhaps to remember what is most important, to reach out to each other and to take care of the most fragile amongst us first. Love to you all... I wish I could be there to bring food and water and comfort and hugs... but from here in Canada, I still send you all of that with my heart and soul.
Colette Coughlin

Thank you Jonathan, so much for being there, for sharing your news. I'll...

Rosie Yea
Posté le 2010-02-14 15:57:31
Thank you Jonathan, so much for being there, for sharing your news. I'll pass it on to my children and friends so they will know what's really happening. All our love and prayers. Rosie

Jonathan Boulet-Groulx is a self-taught student of humanity, a reporter of joy, a wandering photographer, a writer about things human, an artist who captures human fragility. His blog, Mwen pa fou, dedicated to the cause of intellectual disabilities in Haiti, has become a touchstone for those who wish to follow the inside story of Haitian life since January 12th and, in particular, the situation of people affected by intellectual disabilities in the rebuilding of Haiti, his second home. Since May 2009 Jonathan has lived in the small community of L'Arche Chantal, in the Cailles region of Haiti.

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JBG asks everyone to leave a signed note on the blog. All the comments posted here will be collected and sent to people who have influence over the situation of people with intellectual disabilities in the "new Haiti."

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jvc everio
2011-01-19 15:40:27
Gladysmay
2010-11-16 18:21:24
Jim Cargin
2010-10-29 03:54:27
Shannon Skousgaard
2010-09-25 13:27:23
Jim Cargin
2010-06-08 06:32:19
Jane Salmonson
2010-05-25 05:57:35
Maria Antonia da Conceição
2010-05-10 09:31:52
Gladysmay
2010-04-17 08:03:19
Daniel Blais
2010-04-15 22:06:48
Jim Cargin
2010-04-14 06:28:54
SuperMog
2010-04-01 20:20:59
Rens Brouns
2010-03-10 19:02:38
Tim Moore
2010-03-08 13:56:11
Mary
2010-02-28 16:01:19
Gilda Vincent
2010-02-23 18:13:43